Lena Dunham wants the fans to know that there is sometimes a reason she has to rely on a cane: the star of "Girls" says that she lives with Ehlers-Danlos syndrome, a rare disease that can cause joint pain and other problems.
Dunham took to Instagram this weekend for share a photo from her using the walking aid while wearing a nightgown on the outside. The actress wrote that she could have chosen to be embarrassed by the "paparazzi photos" or pretending to wear a Halloween costume, but that was not true.
"This is the life in which I have the most difficulty with chronic diseases. An outbreak of Ehler-Danlos syndrome means that I need more support than from my friends, "Dunham, who was also open about his struggle with endometriosis and eating disorders, explained in the legend.
"So thank you my sweet cane! For years, I resisted everything that could make my physical situation easier, insisting that the cane "would make things weird." But it's a lot less odd to be able to participate than to stay in bed all day. "
Dunham was wearing her nightgown because she just needed to walk to a car to get to a doctor's appointment, she added. An hour later, she wore a different outfit for a meeting, describing the contrasts as being "the double life of a chronically ill woman."
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Last month, singer Sia revealed that she was suffering from chronic pain due to the same syndrome.
What is the Ehlers-Danlos syndrome?
It is actually a group of 13 disorders related to different genetic abnormalities of collagen, essential element according to National Organization for Rare Diseases.
EDS weakens the connective tissues of the body – which normally provide strength and flexibility – either because the collagen is not as strong as it should be, or too little in the skin, muscles, skeleton and blood vessels .
Hereditary disorders affect approximately one in 5,000 National Institutes of Health noted. They are diagnosed with genetic tests and a physical examination.
What are the symptoms?
They depend on the type of EDS and can range from loose joints to life-threatening complications, such as bleeding and the possibility of organ and vessel rupture. the Ehlers-Danlos Company listed these possible warning signs:
- loose joints, too soft or unstable
- articular pain
- soft, stretchy and fragile skin that tears or tears easy bruising
- slow and poor healing
- severe scars
- debilitating musculoskeletal pain
- low muscle tone
what is the treatement?
There is no cure, treatment involves symptom management About 90% of EDS patients suffer from chronic pain, which may require medications, physical therapy to prevent injuries, low-resistance exercises, and support for devices such as braces, canes, wheelchairs, and scooters.
If patients have loose and hypermobile joints that can easily dislocate, avoid situations that could cause them, such as contact sports or lifting heavy objects. Calcium and vitamin D can help maximize bone density.
Doctors can also recommend that patients use sunscreen and mild soaps to protect their fragile skin. Cleveland Clinic it's noted.